2.18.2015

fearfully and wonderfully made {heart cath update}

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We continue to stand in awe of God's provision for our sweet girl with every new detail we learn about her heart.
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Last Tuesday she had her heart cath for surgery mapping. Her team of doctors and nurses were so thorough in explaining every detail prior to her procedure and answering all of our questions. She was a rockstar and really hasn't skipped a beat other than the few moments (that seemed like forever) in recovery when she stopped breathing and they had to give her oxygen. Once we were back home and the sedation wore off, her spunky little personality began to surface again which was a welcome sight.
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Her cardiologist met with us when he was finished to review all of the pictures he captured and a team of 20 doctors met last week to discuss her case and give us a map for her future heart care.
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The morning of her heart cath my dad shared Psalm 139 with us.
She is no doubt fearfully and wonderfully made.

God has perfectly made her heart "imperfect" from the beginning.

I'm still trying to absorb all of the new terminology and fully understand everything he shared with us but in summary, everything that is imperfect is working together at this time perfectly to protect her lungs and keep her well balanced.
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We know this won't last forever and she will have open heart surgery in the next year or two, but for now we are so very grateful for the gift of time we have been given to bond with our girl and continue to allow her to transition to our family before undergoing major surgery.
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Soon after we received her file I began praying specifically that she could be a bi-ventricular repair instead of needing a Fontan. I knew it would be a remote possibility given what we knew about her heart condition but chose to lay my request before our God that is the God of the impossible.

The team of doctors that met last week agreed that she will be able to have a bi-ventricular repair.
The challenging part will be all of the "plumbing" they have to re-route since everything in her heart is flipped and not where it should be.

We recently received her medical files and also learned that God protected her from having
Fontan surgery in China which would have prevented her from receiving the bi-ventricular repair.

Yet another way we continue to see God's hand at work answering our specific prayers.
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Fearfully and wonderfully made.

Our brave little heart warrior...strong and mighty, determined to conquer any obstacle in her way.2015-02-17_0007
Her story continues to unfold before us and we trust in our sovereign God who has written
every chapter and knows every detail that lies ahead.
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I love every inch of this sweet girl even down to her cute little toes.
And this is but a glimpse of His great love for her.

Nothing can thwart the heart and plan of God.

"I praise you, for I am fearfully and wonderfully made.
Wonderful are your works; my soul knows it very well.
Your eyes saw my unformed substance; in your book were written, every one of them,
the days that were formed for me, when as yet there were none of them."
Psalm 139: 14, 16

27 comments:

Kathy White said...

Amy, you are so awesome in your spiritual insight, photos and writing ability. I'm SO happy for the way your life has turned out. Kathy

Anonymous said...

She is so very precious!

Half Gaelic, Half Garlic! said...

That smile melts my heart! To think of all the days you prayed she would find her way to your family...... and that she did!
Beautiful series of your beautiful girl. You should send these photos in with your next update or better yet, send them back to New Hope:)

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